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(The Center received this story in May, 2017)

“I suffer from the motor form of an autoimmune disorder called chronic inflammatory Demyelinating Polyneuropathy (CIDP).  The treatment for this involves bi-monthly six-hour infusions of IVIG (Gammaguard).

In April 2010 after approximately two years of infusions, I was informed by my insurance company, Anthem BCBS, that I had reached my lifetime maximum [coverage limit] and that they would no longer pay for my treatment.  Two appeals to Anthem and one to the State of Connecticut Insurance Department failed to reverse this decision.  After a few months with no infusions, I started to go into a rapid health decline.

The only thing that ultimately saved me was the ACA’s elimination of lifetime limits that went into effect in January 2011.  I fear that the proposed repeal and replacement of the ACA will have devastating effects on my ability to maintain these medically necessary infusions and dramatically impact my life…”

─ S.S. Groton, CT

Tell the Senate to focus on providing quality health coverage & care.
Everywhere in the country.
Call Today – and Tomorrow!

  1. Call 202-224-3121 to contact your Senators.
  2. Flood social media.  #RejectRepeal, #ProtectOurCare. See #SaveMyCare for Social Media Messaging and Images.

Tell them to stop trying to repeal the Affordable Care Act
and make America sicker
. #ProtectOurCare


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