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…in this world nothing can be said to be certain, except death
and taxes
-- Benjamin Franklin
As a nation, we pay our
taxes by April 15th of each year. It is the goal of National
Healthcare Decisions Day, that by April 16th, we will talk with our
loved ones about our deaths. To this end, the Center for Medicare
Advocacy has become the Connecticut State Liaison for National
Healthcare Decisions Day (NHDD). NHDD is a collaborative effort of
national, state, and community organizations committed to ensuring
that all adults with decision-making capacity have the opportunity
to communicate their preferences for end-of-life care.
The Federal Patient
Self-Determination Act requires that all Medicare-participating
healthcare facilities inquire about and provide information to
patients on advance directives. It also requires these facilities
to provide community education about advance directives.
Unfortunately, despite these requirements and state laws giving
patients a choice about their healthcare, it is estimated that only
a small minority of people have executed an advance directive.
Moreover, fewer than 50% of severely or terminally ill patients have
an advance directive in their medical records.
National Healthcare
Decisions Day seeks to address the public’s misconceptions about
healthcare planning and advance directives, by addressing fallacies
such as:
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A living will and a
healthcare power of attorney are the same;
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Advance directives
are only for limiting care;
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A lawyer is needed to
draft an advance directive and/or that it is hard to do;
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Severe illness or a
catastrophic injury will never happen to them.
We Americans, ever
hopeful, have historically avoided conversations regarding our own
deaths. Paradoxically, we also deeply believe in each individual’s
right to chart his or her own destiny. We know that living well,
first and foremost, necessitates thoughtful and informed choices.
Dying is part of living and is thus part of the life we each chart.
Thoughtful choices about dying, made while one is well and not under
duress, and communicated to those we love, help ensure that each
person’s dying process is in accordance with the life he or she has
chosen. To ensure that your death is in accordance with your
wishes, please take this opportunity to share with your loved ones
your thoughts about how you would like to be taken care of while you
are dying. To start the conversation, be frank. Consider simply
saying, “I want to share my wishes about how I’d like to be cared
for in the event I was sick or injured; can we do that now?”
For
more information about NHDD visit
www.nationalhealthcaredecisionsday.org,
or contact attorney Terry Berthelot
(tberthel @ medicareadvocacy.org) in the
Center for Medicare Advocacy's Connecticut office at (860)
456-7790. Remove spaces in email.
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